Encephalitis411 is Proud to partner with the following organizations with the common interest of supporting those impacted by encephalitis
Autoimmune Registry, Inc.
Autoimmune Registry, Inc., ARI, is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases.
Since 2016 they have operated a database for patients who suffer from any autoimmune disease. Their mission is to reduce the time of diagnosis, support research, compute prevalence statistics, and establish autoimmune disease as a major class of disease so that it receives the awareness of the public, the attention of healthcare providers, and the appropriate funding needed to improve upon existing treatment protocols and disease management strategies.
They also aim to become a trusted source where patients with these diseases can find credible, scientifically supported information about their diseases, promising treatments in the pipeline, and accurate prognosis insights.
For more information, go to www.autoimmuneregistry.org
Autoimmune Registry, Inc., ARI, is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases.
Since 2016 they have operated a database for patients who suffer from any autoimmune disease. Their mission is to reduce the time of diagnosis, support research, compute prevalence statistics, and establish autoimmune disease as a major class of disease so that it receives the awareness of the public, the attention of healthcare providers, and the appropriate funding needed to improve upon existing treatment protocols and disease management strategies.
They also aim to become a trusted source where patients with these diseases can find credible, scientifically supported information about their diseases, promising treatments in the pipeline, and accurate prognosis insights.
For more information, go to www.autoimmuneregistry.org
Child Neurology Foundation
The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures.
Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care — and the highest quality of life—for every child. For more information, visit www.childneurologyfoundation.org.
The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures.
Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care — and the highest quality of life—for every child. For more information, visit www.childneurologyfoundation.org.
The Global Autoimmune Institute
The Global Autoimmune Institute advances the prevention, diagnosis, treatment, and cure of autoimmune disease. They partner with top research institutions to drive innovation in autoimmune science—from early immune signaling to new therapeutic breakthroughs and equip patients and caregivers with clear, evidence-based information through webinars, podcasts, and digital tools.
One fantastic tool they have developed is The Autoimmune & Chronic Illness Toolkit. As stated in the publication, "In this guide, you will find insights, tips, resources, and many more tools to support you through specific challenges.
Use this to help navigate the medical system, share your story, track your health, manage symptom flare-ups, and much more. You can also use this resource to help educate friends, family, and coworkers. Regardless of where you are on your journey with autoimmune disease or other chronic health issues, this toolkit is for you."
Request the download link at the following link: The Autoimmune & Chronic Illness Toolkit
The Global Autoimmune Institute advances the prevention, diagnosis, treatment, and cure of autoimmune disease. They partner with top research institutions to drive innovation in autoimmune science—from early immune signaling to new therapeutic breakthroughs and equip patients and caregivers with clear, evidence-based information through webinars, podcasts, and digital tools.
One fantastic tool they have developed is The Autoimmune & Chronic Illness Toolkit. As stated in the publication, "In this guide, you will find insights, tips, resources, and many more tools to support you through specific challenges.
Use this to help navigate the medical system, share your story, track your health, manage symptom flare-ups, and much more. You can also use this resource to help educate friends, family, and coworkers. Regardless of where you are on your journey with autoimmune disease or other chronic health issues, this toolkit is for you."
Request the download link at the following link: The Autoimmune & Chronic Illness Toolkit
The Autoimmune Encephalitis (AE) Alliance strives to educate physicians in evidence-based best practices for the diagnosis and treatment of AE. Successful patient care requires a collaborative, interdisciplinary approach.
The AE Alliance endeavors to establish a supportive community of patients, families and caregivers, so that no one faces autoimmune encephalitis alone.
The AE Alliance works to facilitate scientific research into the causes of AE and its treatment, with confidence that a cure will be found. https://aealliance.org/
The AE Alliance endeavors to establish a supportive community of patients, families and caregivers, so that no one faces autoimmune encephalitis alone.
The AE Alliance works to facilitate scientific research into the causes of AE and its treatment, with confidence that a cure will be found. https://aealliance.org/
Hashimoto's Encephalopathy / SREAT Alliance
Hashimoto's Encephalopathy (HE), also recognized as steroid-responsive encephalopathy associated with thyroid autoimmunity (SREAT), is a rare neurological condition. The key features are a variety of neurological symptoms, such as seizures, confusion, memory problems, movement disorders, and even psychotic symptoms, and the presence of anti-thyroid peroxidase (anti-TPO) or anti-thyroglobulin (anti-TG) antibodies.
www.hesaonline.info/
Hashimoto's Encephalopathy (HE), also recognized as steroid-responsive encephalopathy associated with thyroid autoimmunity (SREAT), is a rare neurological condition. The key features are a variety of neurological symptoms, such as seizures, confusion, memory problems, movement disorders, and even psychotic symptoms, and the presence of anti-thyroid peroxidase (anti-TPO) or anti-thyroglobulin (anti-TG) antibodies.
www.hesaonline.info/