finding specialists
One of the biggest challenges faced by our community is finding specialists who are knowledgeable about encephalitis. The unfortunate reality is that there is a shortage of medical providers with experience in recognizing, diagnosing, treating, and managing the complex needs of encephalitis patients.
It is not uncommon for us to hear from those who sought second, third, and sometimes multiple more opinions before finding a medical team that met their needs. After all, the average general neurologist may encounter an encephalitis patient only once or twice in their entire career. Oftentimes our community members achieve the best outcomes with medical providers who have established a track record of caring for encephalitis patients.
If you have concerns about your care, we recommend arranging a consultation with a known expert in the field. Encephalitis411 is fortunate to have representation on its medical faculty from the only 3 encephalitis centers in the United States:
You can also find provider suggestions from fellow community members at our private inspire.com and Facebook forums.
One of our priorities is to establish a credible list of providers with expertise in encephalitis diagnosis, treatment and rehabilitation. If you have a good experience to share with us, please get in touch! Your contribution will strengthen our ability to meet the needs of fellow community members.
It is not uncommon for us to hear from those who sought second, third, and sometimes multiple more opinions before finding a medical team that met their needs. After all, the average general neurologist may encounter an encephalitis patient only once or twice in their entire career. Oftentimes our community members achieve the best outcomes with medical providers who have established a track record of caring for encephalitis patients.
If you have concerns about your care, we recommend arranging a consultation with a known expert in the field. Encephalitis411 is fortunate to have representation on its medical faculty from the only 3 encephalitis centers in the United States:
- UCSF Center for Encephalitis and Meningitis (San Francisco, CA) led by Dr. Michael Wilson
- The Encephalitis Center at Johns Hopkins (Baltimore, MD) led by Dr. Arun Venkatesan
- UT Southwestern Medical Center (Dallas, TX) led by Dr. Steven Vernino
You can also find provider suggestions from fellow community members at our private inspire.com and Facebook forums.
One of our priorities is to establish a credible list of providers with expertise in encephalitis diagnosis, treatment and rehabilitation. If you have a good experience to share with us, please get in touch! Your contribution will strengthen our ability to meet the needs of fellow community members.
