What Encephalitis Is and How We’re Helping
Encephalitis is inflammation of the brain. It can strike anyone, anywhere, at any time, and at any age, resulting in a serious and sometimes life-threatening medical emergency.
Those who survive its assault are left with an acquired brain injury, requiring specialized treatment and comprehensive rehabilitation from an entire team of skilled professionals. Residual symptoms are varied, life-altering, and costly, leaving survivors and their loved ones changed forever.
Though it is considered rare, each year an estimated 20,000 people in the United States and 500,000 people globally are affected by this difficult-to-diagnose illness. Its sudden onset and aftermath is devastating for patients, families and society alike. It can leave a family in financial ruin; more than half of survivors are unable to return to work, resulting in a 70% reduction in income. In the United States alone, hospital costs for the treatment of encephalitis have escalated to over $2 billion. That does not include charges for physicians, diagnostic testing, pharmaceuticals or rehabilitation.
Encephalitis411, a 501(c)(3) organization, seeks to increase awareness of encephalitis and advance research into this life-threatening, life-altering brain disorder. We also advocate for those impacted by encephalitis, resulting in earlier diagnosis and best possible treatment outcomes.
Our collaborators come from highly esteemed medical institutions such as Johns Hopkins, Kaiser Permanente, the National Institutes of Health, Cleveland Clinic, Vanderbilt University Medical Center, Mayo Clinic, Centers for Disease Control and Prevention, and Brown University. Together, we are working to enhance the ability of clinicians to recognize and diagnose encephalitis earlier, to offer treatments that create the best outcomes, and to provide hope.
Those who survive its assault are left with an acquired brain injury, requiring specialized treatment and comprehensive rehabilitation from an entire team of skilled professionals. Residual symptoms are varied, life-altering, and costly, leaving survivors and their loved ones changed forever.
Though it is considered rare, each year an estimated 20,000 people in the United States and 500,000 people globally are affected by this difficult-to-diagnose illness. Its sudden onset and aftermath is devastating for patients, families and society alike. It can leave a family in financial ruin; more than half of survivors are unable to return to work, resulting in a 70% reduction in income. In the United States alone, hospital costs for the treatment of encephalitis have escalated to over $2 billion. That does not include charges for physicians, diagnostic testing, pharmaceuticals or rehabilitation.
Encephalitis411, a 501(c)(3) organization, seeks to increase awareness of encephalitis and advance research into this life-threatening, life-altering brain disorder. We also advocate for those impacted by encephalitis, resulting in earlier diagnosis and best possible treatment outcomes.
Our collaborators come from highly esteemed medical institutions such as Johns Hopkins, Kaiser Permanente, the National Institutes of Health, Cleveland Clinic, Vanderbilt University Medical Center, Mayo Clinic, Centers for Disease Control and Prevention, and Brown University. Together, we are working to enhance the ability of clinicians to recognize and diagnose encephalitis earlier, to offer treatments that create the best outcomes, and to provide hope.
Our work
Our work centers around research, awareness, and advocacy. With this 3-pronged approach, we aim to fulfill the unmet needs of the encephalitis community across the U.S.
Our mission is to improve the quality of life for those impacted by encephalitis. We have helped thousands of patients, caregivers, and medical professionals since our inception in 2017.
Our mission is to improve the quality of life for those impacted by encephalitis. We have helped thousands of patients, caregivers, and medical professionals since our inception in 2017.
GIVING HOPE
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The field of research into encephalitis remains limited. We encourage and support funding for prevention, diagnostics, treatment and rehabilitation to achieve better outcomes after this devastating illness.
The field of research into encephalitis remains limited. We encourage and support funding for prevention, diagnostics, treatment and rehabilitation to achieve better outcomes after this devastating illness.
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